This site has had a Discussion Board since late 1999. The Discussion Board is the ideal place to share any information you have on the disease, or to ask questions of fellow sufferers. We guarantee we will not pass on your details or E-Mail address to any other party, for any purpose. However, please be aware that some people farm E-Mail addresses from Message Boards and use them to send out Spam E-Mails... There is not a lot we can do about this, but so far we have not had any occurrences of this, so fingers crossed!

Here are all the 2126 Messages (most recent at the top, 20 per page)

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Hi everyone! I'm convinced a large solution is what we take in internally and the diet/detox would work for a lot of people (I haven't tried it yet)....because a few days ago, I ate a hard-boiled egg two days in a row, and for a couple of days after that,

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Hi everybody Some of you have been writing about having flare ups during may. I live in Denmark and I've got an outbreak on my neck now- in july. Have you found out what makes DD get worse during spring/summer-time ? One of you have been writing about a detox diet which helped a lot on your DD. Would you please tell me more about it ? I don't want to take meds for my DD especially because the cream dosn't help at all. It seems like my DD is having a life of its own, whitch I can not control. All though I'd like to get rid of my DD its no longer such an issue for me. I'm not getting sad about it just a bit irritated . I've resently found out that dating and having DD does'nt have to be a problem. My boyfriend likes me anyway and I'm so much more than the red spots on my body :0). I so apreciate this discussion board, and I'll be glad if some of you wrote me back ! Best wishes Sine

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Aaron - Lovely to hear that you are doing so well, sounds like you have the dariers under control with all your different treatments, also sounds as though you are v. busy indeed. Big congrats on the school results, you must be delighted. My dariers has gone absolutely nuts since I got pregnant, 4 weeks to go 'til the baby arrives and I'm hoping it will settle down after that (otherwise I'll be sleep deprived AND itchy, not a good combination!) Hope things continue to go well for you.

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Good to hear from you Aaron and that you are handling things Ok. Good luck and lots of love!

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I have found that vitamin B complex has cleared up my skin quite a bit. I also take 3 psychiatric drugs that seem to have calmed my nerves and thus my darier's. I take zoloft, an antidepressant, klonopin, an antianxiety med, and risperdal an antipsychotic

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Claudia, the best natural quick-relief and comforting, although temporary cure for me is a colloidal oatmeal bath, with drops of Tea Tree oil for antiseptic, and after Witch Hazel and Aloe gel applied to soothe. After that, Gold Bond medicated powder to dry it out.

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I have really enjoyed the discussion board. I do not have DD,and I am very grateful. I am a nurse however and I am to see a lady tomorrow who is having a severe outbreak. I have not seen her yet but all they are doing for her are domboro soaks, which I think must be pretty ineffective. I have some possible suggestions for her but if anyone have a favorite, that works, for the severe denuded skin with drainage. I want to decrease her discomfort if nothing else. Thank you for any help. Claudia Thomas Virginia keeper@visi.net

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...and before I changed my diet/lifestyle I was very warty and had severe Dariers attacks on a regular basis. It is now only a few years since I made a conscious effort to have a wholesome and unrefined diet and the results have been stggering for me. Above all else a positive attitude does have a positive and profound effect on our systems - of that I have no doubt! Px

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Martha - I have never ever taken any drugs for my Dariers. I eat a diet rich in olive oil and fish. I drink lots of water and moderately exercise (just walking every day and keeping myself busy than most other things!) but I do drink wine and lots of blac

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Interesting discussion. I have been diagnosed with DD since I was 18. Mine is only on the left side primarily on the leg, and just a very little on the arm. I have on the palms some bumbs, but mild. No nail involvement. I hate it in the summer because that is when it flairs. I have to be very careful about being in the sun which is a bummer being in Texas which has long summers. I have never found anything that helps much. I have used Accutane and large dose vitamin A, but stopped out of concerns when we wanted to have children. No one else in my family as it or any of my deceased relatives. Back to the accutane. That stuff remains in the liver longer than the manufacturers say it does which is a concern if you want to have children. Would love to know if there are any new treatments which help. Good luck all. Dena Mcclure

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In answer to Scotts question, haven't heard of the one you mention but I had been using Eurerin which is a treatment for ezcema, itchyosis, psoraisis etc and other dry skin problems, it was pretty good for a while, especially round the neck area. On anoth

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Poppy, What exactly is your secret of your skin staying DD free? the only thing that seems to work for me is Accutane and as much as I love the way it helps the DD I am also aware of the stress it puts on my body especially the liver. I had been doing the

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Hi Andrea Yes I go absolutely 'clear' without bumps either (apart from a miniscule patch on my neck which I hide with my long hair anyway). They just seem to clear up and totally disappear and then 'erupt' into bumps and red rash (even on my face) during

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Does anyone have experience with Elidel (an excema treatment) as a treatment for darier's? Hydrocotisone creams and triamcinolone no longer work very well for me. We determined ten years ago that Accutane is not an option for me (joint pain). Two links I found: http://www.pharmacist.com/new_drug/elidel.cfm http://www.elidel.com/index.jsp

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Jenny - Just to let you know that I haven't given the progesterone a go as as I seemed to get on top of it and am clear at the moment!!! It's certainly something I'll have a go with should the flare ups raise their ugly head again. I have to say that I am clear all year and always seem to have flare-up rashes during every April/May - no idea at all why that should be! So I'm crossing fingers (and toes) that I don't have a problem again til next year now! Does anyone else ever just have a 'seasonal' flare up? Very Strange - best Poppyx

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Jenny...No, I haven't given up on it....I use the low-dose kind ( for now)....I'm looking into a perscription for higher dose....but as I said I have to wait so long for a Dr's appt. I'm going to a walk-in clinic that perscribes high-dose cream next Wednesday, so we'll see. I'm just working part-time right now (just graduated), so I'm short of funds and in debt, so the last thing I need to do is spend money on this cream rather than rent. I think my school plan still may pay 80% of it though, if so, I'm in the clear. I'm far from giving up on it!! It's still really good to my skin :o)

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Yes Poppy, I've been wondering that too - where is Aaron - Aaron if you are out there and have found a miracle cure for dariers and are hogging it to yourself then we want to know about it!! Otherwise just give us an update on yourself, your info is always interesting to read...

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Andrea How many mg of progesterone are you applying per day? Are you using the high strength cream or still managing on the lower dose? Have you given it three full months of ongoing use except for the week break during your period (if your skin will allo

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Marie - I got a lot of samples from the pharmacy having to do with skin, and one of them is for red skin, to tone down the redness. One's called DIROSEAL by AvFne...treatment cream for localized redness. It's for sensitive skin, hypoallergenic...etc...It has that green tint that counteracts redness. It's for the face. Maybe you can find it where you live (I didn't know those makeup counters gave samples, but ask them...it's worth trying them before you buy!) Ask for samples to do with Rosacea.... Good luck!

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Hi there - I think the last few entries (Claire, Andrea and Marie) hit it spot on. Be positive - exercise and even drinking lots of water do make a difference because they 'impact' on the inner you and it has a knock on effect I'm sure. Claire - I shall k


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